Nick's Pavilion: www.nickspavilion.com

Please visit us at: WWW.NicksPavilion.Com

Donating to Nick's Pavilion

Thank you for considerating a contribution to MVNIA-Nick's Pavilion. A 501(c)3 Organization, your donation is tax deductible with a receipt. To obtain a receipt, please include a self-addressed stamped enveloped (SASE) with your donation.

To make a donation, a check or money order made payable to MVNIA-Nick's Pavilion is the safestway to send money through the mail. Here is the address to which donations should be mailed:

The Private Bank-Geneva
ATTN: Diane Honeyman
501 West State St., Ste. 101
Geneva, IL 60134

With the hundreds of thousands of charities available for your consideration, we are honored that you consider Nick's Pavilion to be a cause worthy of your support. Thank you!!

What is Nick"s Pavilion?

Nick’s Pavilion is the first-ever home addition project of its kind sponsored by Mid-Valley Neighborhood Improvement Association (MVNIA).

Designed by Mike Dixon of Dixon Architects, the addition will serve several functions: First, it will expand the main (entry) level to include all of Nick’s living facilities. It will include a bathroom (the second for the family), Nick's bedroom, and a transitional area between his bedroom and the kitchen. It will also open out on to the back patio where there will be a protected fire pit.

The front entry to the home will be re-worked to include a wheelchair ramp without changing the exterior façade of the home. A second ramp will be placed (internally) at the rear of the home, enabling Nick to access the lower level.

Downstairs, Nick will have access to the current family room and a new Game Room. The Game Room is extremely important in the coming years. Due to the rigidity of Nick’s eating schedule and the need to constantly monitor his metabolic levels, he is unable to visit the home of friends. The designing architect kept Nick’s social needs and limited extracurricular endeavors in mind in his design of this room so that Nick can have a special place to entertain friends.

What is L-CHADD?

What is this "L-CHADD" that affects Nick so terribly? Well, you can probably tell it's an acronym. The official name of Nick's condition is Long-Chain 3 Hydroxyacyl-CoA Dehyrogenase Deficiency. Quite a mouthful for a nine-year old! Nick's body cannot correctly metabolize fats because a necessary enzyme is either missing, undersupplied, or functioning improperly. As a result, his diet and his lifestyle must be severely restricted in order to keep his body in balance. He cannot eat high-fat foods. He cannot skip meals and must not deviate from a strict eating schedule. He can neither overeat nor undereat; rather, he must keep his caloric intake steady so that his metabolism remains at a "slow burn" pace. For more information about L-CHADD and other metabolic and/or Fatty-Oxidation Disorders, please visit the links listed below.

Nick's Pavilion

Saturday, August 23, 2008

www.nickspavilion.com

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What is L-CHADD?

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